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From 1911 to 203: Renewing UK Birth Cohort Studies Metadata

Presenter 1
John Johnson
University of London
Presenter 2
Jack Kneeshaw
UK Data Archive

CLOSER (Cohorts and Longitudinal Studies Enhancement Resources) is a five-year program which aims to maximize the use, value and impact of these studies both within the UK and abroad. The program is run by a network of nine of the UK's leading studies (8 cohorts and one panel study), with participants born between 1911 and 2007. A major strand will be documenting these surveys and data (over 250 survey instruments and around 250,000 data variables) in DDI-L. The surveys cover a wide range of survey collection methods, paper questionnaires to CAI, biomedical and administrative linked data. The presentation will cover the workflow and systems used to capture paper questionnaires, archived documents, available DDI 2.0 and other electronic metadata from the survey and metdata captured from data into DDI-L. This includes an in-house application for questionnaire capture, written in Ruby on Rails, Python-based data quality tools to interface with SPSS and Colectica for overall data management and its co-ordination across the 8 studies. The presentation will also highlight how some recent changes to the DDI specification will assist in the management of these projects.

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